Nothing drained the holiday cheer from me faster than Levi having a seizure the weekend before Christmas. We had been to the movies as a family to see Wicked. He seemed a little restless during the movie but I thought he just wasnt interested in the plot. Early the next morning, he came into our room feeling bad and had a fever. We gave him medicine and he stayed in our room with me. Neither he nor I could go back to sleep so we watched the Grinch. As he was failing back to sleep (and I was still awake), he started to seize. I am thankful he was right next to me and I was awake. Praise to God! His doctor optimized his med for his weight/Keppra level but no other changes. He went on to have a fever for next few days and head cold. I got it about 24 hours later and the two of us were pretty sick for the week of Christmas.
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Seeing Wicked |
After being 3 years seizure free, this was overwhelming sad and discouraging for Wes and I. We will never get to losing him for those long minutes as we wait for the seizure-rescue med to work .And then we inevitably lose mental peace and security in the days and months afterwards. It makes me deeply feel C.S. Lewis words "always winter, never Christmas" from the Lion, Witch and the Wardrobe. Levi's eight year journey from stroke to epilepsy seem like "always winter" sometimes. But I am choosing to remind myself Christmas did come. "Once in a world, a Stable had something in it that was bigger than our whole world." Bigger than brain bleeds. Bigger than epilepsy. From a manger, to across to the right hand of God, time was invaded by eternity adn it changed everything.
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Seeing Mufasa day after seizure, sick and all |
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the girls got makeovers at Ulta and were shown how to apply make up which they thought was super fun! |
Being sick meant Levi and I tuned into Church and Christmas Eve of Eve services from our living room.
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As our family went to our friends, Guertins, annual Christmas Eve fiesta / white elephant, Levi and had take out at home. |
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